Even though dermatomyositis and polymyositis are quite rare, you can still find support from other caregivers. Technology makes it easy to find those who share your concerns. There are groups on social media sites, blogs, and websites.
Research has found that people who get support from a social network cope better, feel more in control, and have better outcomes than those who are isolated.
Ask your loved one's doctor or nurse if he or she can direct you to a myositis support group in your area. You may also contact local hospitals that specialize in muscle diseases, and ask if they sponsor myositis support programs.
In addition, you can visit the links below to connect to even more support resources:Myositis Support
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