Connecting with others

Connecting with others Connecting with others

Strength in numbers

Even though dermatomyositis and polymyositis are quite rare, you can still find support from other caregivers. Technology makes it easy to find those who share your concerns. There are groups on social media sites, blogs, and websites.

Research has found that people who get support from a social network cope better, feel more in control, and have better outcomes than those who are isolated.

Ask your loved one's doctor or nurse if he or she can direct you to a myositis support group in your area. You may also contact local hospitals that specialize in muscle diseases, and ask if they sponsor myositis support programs.

In addition, you can visit the links below to connect to even more support resources:

Myositis Support
The Myositis Association
Muscular Dystrophy Association (MDA)
Understanding Myositis Community
American Autoimmune Related Disease Association

This website may identify third-party organizations and provide links to third-party websites or other third-party information (“Third-Party Content”). The Third-Party Content is meant for informational purposes only, is not endorsed by or under the control of Mallinckrodt, and is not meant to replace a physician's medical advice. Mallinckrodt has no responsibility or liability for and makes no representations whatsoever about any Third-Party Content.

More from DM/PM & YOU

Stephanie

Living with polymyositis since 2009

“Stay positive, research your disease, find a great medical team, and always just have hope.”

Learn about the possible causes of dermatomyositis and polymyositis.

Frequently
asked questions

Get answers to some questions about DM or PM.